8/28/2010

Taylor has been doing well. She is enjoying riding her horse (Lady) everytime she can. She is doing well with the new school year. She is currently being home school and misses her friends at school. She hopes to see them at school soon.

Taylor has continued to work hard on her health. She still has seen no change in her physical ability but she has stayed in good health and avoided the flu season so far. Doctor's are concerned with her weight gain however she has continued to make progress. Her doctor's orders are to eat and drink foods with as many calories as she can find. She can enjoy as much sweets as she wants. Ice Cream makes her happy. She is looking forward to trick or treating and scaring people as a ghost this year. She works very hard at her school studies and is enjoying the school year. She has proven to be an excellent speller.

Taylor has been doing well now. She was constrained to home for the last two weeks due to bronchitis and pressure sores. With that behind her now she is eager to enjoy the last weekend before school starts on next Tuesday. She is looking forward to being a part of Mrs. Hardesty's class.

Taylor has enjoyed the break from school. She continues to keep a busy schedule with therapy and other necessary activities. She enjoyes her time in the pool. It has been a nice break from the hot summer. She has continued to have a strong appetite. All is contributing to her health. She has had fun watching her brother play the wii and baseball. She is still his big sister telling him what to do. Even when he doesn't take direction well. She has made it a goal of hers to work towards having the ability to remove her trach and only rely on her pacer to breath. Although she continues to use the ventilator at night she has been making improvements and becoming less dependent on it.

Taylor is looking forward to the end of summer school on Friday. She has had to stay inside recently due to the heat and her body not being able to regulate the heat. She continues to stay in good spirits and is looking forward to celebrating the 4th of July holiday and her brother's birthday.

Taylor has been doing well. She is looking forward to her summer break. She continues to work on her physical therapy. Taylor would rather be outside enjoying the sun but she knows it is necessary to have a chance to get better. Last week was her open house at school. She got to play the part of the narrator because of her great reading skills. She did an excellent job. This weekend she enjoyed her time at the neighborhood block party.

Taylor has been doing well. She is really enjoying the sunshine. She has been her brothers biggest cheerleader for his swim lessons, soccer games and baseball.

Taylor had a great Easter weekend. After having all of last week off of school she was well reared and enjoyed her weekend. On Saturday she went to her dad's house and celebrated her 8th birthday with family and friends. She got to do a lot of crafts and watch her brother play baseball at the park. Later she rode one of her horses with Grandma Judy. She had fun. And now is back to school.

Taylor has been doing well. Being the sun worshiper that she is she is glad to see the sunshine. She has enjoyed the recent weather very much. Last Monday was her 8th birthday. She said she still feels 7.

Taylor has had a rough couple of weeks. She got the bug while at the coast and has had to miss school and stay on the ventilator during the day. She had more secretions and was running a fever. This was compounded by the fact that she was not drinking her fluids well. She has been feeling better now and started going back to school at the end of the week.

Taylor was very excited about this weekend. She is visiting the coast. She enjoys watching the ocean. She is glad that the sun is shining.

Taylor has been doing well. She recently went for a checkup at the doctor and they were very impressed at how she was doing. She has not been back in the hospital since she left. This is really uncommon with an injury like hers. She continues to keep up with her grulling schedule of going to school and keeping up with he physical therapy. She has been doing well at both. We continue to watch the advances in science and hope that if she is unable to get movement back on her own that science can help. For now she is focused on having fun. She gets a kick out of her crazy brother and really enjoyed laughing at him while he made his first attempts on rollerskates. She has been becoming quite the artist. Making pictures with Grandma and doing puzzles with dad, even drawing elaborate drawings with her mom. She has been playing a game called "stare" where you focus on a card then answer questions about it. She continues to be the champ. She has also been using her computer more. She uses it mostly for school, playing games and checking the Internet (even her blog). Thanks for thinking of her and checking in.

Taylor has continued to work hard at her therapy. She is back in school now and is doing well. Being the sun worshiper that she is she is enjoying the spring like days and the sunshine that comes with it. She has been told by Grandma Judy that we need the rain and Taylor said that she will ask for some rain and then some more sun. Taylor is showing off the balloon animal dog that her Dad just learned how to make for her.

Taylor has had a wonderful Christmas. Santa was good to her and her little brother. She got lots of craft things to do and plenty of games to play. She got a horse that she needs to paint and she has been thinking about how she wants to paint the horse. She has enjoyed spending all of her time with her family. Taylor is also enjoying the time away from school. It has allowed her more time with her friends. She has battled with a cold and has done well. It was difficult for her since her lungs were getting congested and she had to continue to have suction done on her airways. Now she his done with that and is looking forward to the rest of her break. She is hoping to go visit her horse and possibly go on a ride for the new year.

Taylor has been doing well since the last blog. She has continued with her diligent physical therapy regiment and continues to stay focused and do well in school. She recently got a "stander" that helps her stand and keeps her body used to the standing position and loosens her muscles in her feet sot that they don't get atrophied. She has been seen on a horse quite a bit since the last blog. She has been riding Lady with Granma Judy at Grandma's ranch. Taylor has enjoyed the many holidays since the last blog. Haloween came and she was a very beautiful princess. during Thanksgiving she was as frustrated as everyone when she assisted in putting together a 500 piece puzzle of the New York skyline that her dad got her during his recent trip. Taylor is looking forward to Christmas. She asked Santa for a Snow Globe the other day during a trip to the mall. She has had some increased freedom now that she has been using her power wheelchair more often. She has been spotted on trips to the mailbox and back during the day.

Sorry that it has been a while since the last update. We greatly appreciate everyone who continues to check the site and send Taylor "well wishes" through the blog. Thank you all.

excitement

Taylor had a busy week last week. On Thursday of week before last, she spent all day picking out halters for her horses and then picking out jewels with which to bling them up. She then went to her local park with several of her close supporters, family members, and spent the rest of the day decorating the halters. It took approximately 6 hours for us to decide shapes, colors and locations to get the jewels installed and the halters turned out perfect. We then had to take them both back to the house and try both halters on Blackie as Lady was out of the area. We took several pictures of Blackie wearing the halters and some pictures of Taylor wearing her masterpieces as well. It was a great day with much accomplished. Then on the following Monday Taylor ventured down to Williams to check out how Lady's halter would look on her. It was beautiful. Taylor had picked a light blue halter for Lady because as most of us are aware Lady has one baby blue eye and the halter was a perfect match. It was all decorated in light colored jewels and looked gorgeous on her. In the meantime, Grandpa showed up and decided Lady needed new shoes so he proceeded to shoe her with Taylor making sure to supervise every moment if the process. Lots of questions and wondering how you can drive nails in her foot and not hurt but Lady didn't jerk her foot away so we decided that it must not hurt! Then, to all of our surprise, when Lady was done getting her new shoes on Taylor decided she wanted to ride. Boy, did she want to ride. We saddled up about noon and rode until about 4 pm. No breaks in between and speeding up the pace every few minutes. We trotted in circles and trotted around the barrels and it was only because her pilot was a little leary that she was held back from loping. Lady is extremely out of shape and a little pregnant so Taylor would let her rest a few minutes every once in a while. Taylor's cousin was here and on another horse with Taylor's Uncle Ryan so that was enough to spark on a friendly competition and the race was on. To the end of the barn and back as fast as we could trot. Taylor was thrilled and her love of her horses was shining through again. Then, two days later she was back for a couple more hours and has plans to make this a regular activity until she has to go back to school. There is a spirit here that just can't be stopped and we wanted you to know how your thoughts and prayers are helping and hope they continue to help her along. She hasn't regained much use yet but with this kind of spirit, we all have to believe that something will make the future even better. Thanks again for all your support and I am going to try to attach some pictures to show just how spunky she remains.

We apolagize for not updating the site more regularly. Life has continued to go on and Taylor has been staying busy. She has been doing well. Taylor continues to worship the sun and has a great summer tan going now. Taylor reluctantly is going to summer school. She has some ground to make up in reading and math. The math has been a challenge due to the fact that she can't use her fingers to count like the other kids. All in all she does very well. She has been spending more time in her electric power chair. She is getting used to the chair and is starting to master it. She is only using it around the house and has not braved using it in public yet. Taylor took another trip on her favorite horse Blackie the other day with her dad on Father's Day. It was a great present. She sat on him and road Blackie around the pasture. Taylor has been able to beat the heat this summer by going to the movies, most recently "Kung Fu Panda", she has also been making crafts for her friends. Her favorite thing to make is necklacies.

Taylor has been doing well lately. She is going to school and doing great with her school work. Her allergies have calmed a little and she has had less trouble breathing lately.

Recently she got to go back stage and meet Taylor Swift at her concert in Sacramento. She had so much fun and is now one of Taylor Swift's biggest fans. Her brother says that Taylor Swift is his new girlfriend.

Taylor is still working hard on the bike every morning and is using her strong will to continue to try to get better.

Taylor has had a rough couple of weeks. She had some difficulty breathing. She has started to do breathing treatments again and has spent a lot of time on the ventilator. Taylor missed many days of school and was fortunate that Easter break fell during this inconvenience so that she did not miss to much school. Her breathing is getting better. She is still doing breathing treatments however she started to go back to school this week after Easter break.

She had a great Easter. She found more eggs than her brother which she did not let him forget. She got out and enjoyed the beautiful weekend.

Her birthday is Sunday. She will be turning 7. She has asked to go to Chuck E Cheese. She also wants to go to see the new movie "Horton".

She still talks about going to see Taylor Swift in April. She has even got her brother singing most of Taylor's songs.

Taylor has continued to stay busy. She has had a couple of days of skipping school as she wasn't feeling real well. She had the beginnings of a cold so took a day or two to shake it off and will head back to school on Monday. She continues to keep a very positive attitude as always. The other day her brother decided that he would be a ghost so he threw a blanket over his head and proceeded to make ghostly sounds. He was quite the spook and we enjoyed his antics but he soon moved on to other things. Taylor felt inspired to then be the ghost. We threw the blanket over her head and chair and rolled up behind him and made a big ghostly howl that definitely got his attention. She continues to make the small things fun. She got to go see princesses on Ice at Arco Arena. She really enjoyed the show and she met up with some friends there as well. Her friend's mom was kind enough to take some really great pictures of the princesses skating as well as pictures of Taylor with her family and Taylor with her friends and put them all into a really great scrapbook for happy reminders of her day. She really enjoyed getting to see the pictures. Thank you all again for your thoughts and prayers as Taylor works toward progress with every day.