Saturday, December 9, 2006

Last night was another sleepless night for Taylor. They came in at about 1am to do a breathing treatment and woke her up and she never went back to sleep. She got a visit from her brother this morning and was very excited to see him. Although due to the fact that her brother is very hyperactive the excitement eventually wore off. During rounds the doctors finally decided to consider patient comfort at the request of Taylor's family. They will continue to do her breathing treatments every 6 hours and will skip them if Taylor is asleep. Her stomach has gotten better so they are allowing her to eat again and are going to discontinue the feedings through the tube in her stomach and just let her eat all of her food orally and see how she handles that. She is scheduled to take another trip around the hospital in her chair today however I think Taylor is going to make them wait until after she has had a chance to eat.

Taylor eventually got in her chair and went for a cruise in the hospital. It was not a great day outdoors so they kept their exploring inside. Avory, one of Taylor very first friends stopped by to see her. They had a great time. They laid side by side in bed as Avory read Taylor a story. She still has not slept much and she is looking like she will get a great night sleep tonight.