Thursday, October 22, 2009

Taylor has continued to work hard on her health. She still has seen no change in her physical ability but she has stayed in good health and avoided the flu season so far. Doctor's are concerned with her weight gain however she has continued to make progress. Her doctor's orders are to eat and drink foods with as many calories as she can find. She can enjoy as much sweets as she wants. Ice Cream makes her happy. She is looking forward to trick or treating and scaring people as a ghost this year. She works very hard at her school studies and is enjoying the school year. She has proven to be an excellent speller.

Thursday, August 13, 2009

Taylor has been doing well now. She was constrained to home for the last two weeks due to bronchitis and pressure sores. With that behind her now she is eager to enjoy the last weekend before school starts on next Tuesday. She is looking forward to being a part of Mrs. Hardesty's class.



Friday, July 10, 2009

Taylor has enjoyed the break from school. She continues to keep a busy schedule with therapy and other necessary activities. She enjoyes her time in the pool. It has been a nice break from the hot summer. She has continued to have a strong appetite. All is contributing to her health. She has had fun watching her brother play the wii and baseball. She is still his big sister telling him what to do. Even when he doesn't take direction well. She has made it a goal of hers to work towards having the ability to remove her trach and only rely on her pacer to breath. Although she continues to use the ventilator at night she has been making improvements and becoming less dependent on it.

Monday, June 29, 2009

Taylor is looking forward to the end of summer school on Friday. She has had to stay inside recently due to the heat and her body not being able to regulate the heat. She continues to stay in good spirits and is looking forward to celebrating the 4th of July holiday and her brother's birthday.



Monday, May 25, 2009




Taylor has been doing well. She is looking forward to her summer break. She continues to work on her physical therapy. Taylor would rather be outside enjoying the sun but she knows it is necessary to have a chance to get better. Last week was her open house at school. She got to play the part of the narrator because of her great reading skills. She did an excellent job. This weekend she enjoyed her time at the neighborhood block party.

Saturday, April 25, 2009

Taylor has been doing well. She is really enjoying the sunshine. She has been her brothers biggest cheerleader for his swim lessons, soccer games and baseball.


Tuesday, April 14, 2009

Taylor had a great Easter weekend. After having all of last week off of school she was well reared and enjoyed her weekend. On Saturday she went to her dad's house and celebrated her 8th birthday with family and friends. She got to do a lot of crafts and watch her brother play baseball at the park. Later she rode one of her horses with Grandma Judy. She had fun. And now is back to school.



Thursday, April 2, 2009

Taylor has been doing well. Being the sun worshiper that she is she is glad to see the sunshine. She has enjoyed the recent weather very much. Last Monday was her 8th birthday. She said she still feels 7.


Saturday, March 14, 2009

Taylor has had a rough couple of weeks. She got the bug while at the coast and has had to miss school and stay on the ventilator during the day. She had more secretions and was running a fever. This was compounded by the fact that she was not drinking her fluids well. She has been feeling better now and started going back to school at the end of the week.



Saturday, February 21, 2009

Taylor was very excited about this weekend. She is visiting the coast. She enjoys watching the ocean. She is glad that the sun is shining.



Monday, February 16, 2009





Taylor has been doing well. She recently went for a checkup at the doctor and they were very impressed at how she was doing. She has not been back in the hospital since she left. This is really uncommon with an injury like hers. She continues to keep up with her grulling schedule of going to school and keeping up with he physical therapy. She has been doing well at both. We continue to watch the advances in science and hope that if she is unable to get movement back on her own that science can help. For now she is focused on having fun. She gets a kick out of her crazy brother and really enjoyed laughing at him while he made his first attempts on rollerskates. She has been becoming quite the artist. Making pictures with Grandma and doing puzzles with dad, even drawing elaborate drawings with her mom. She has been playing a game called "stare" where you focus on a card then answer questions about it. She continues to be the champ. She has also been using her computer more. She uses it mostly for school, playing games and checking the Internet (even her blog). Thanks for thinking of her and checking in.

Tuesday, January 20, 2009


Taylor has continued to work hard at her therapy. She is back in school now and is doing well. Being the sun worshiper that she is she is enjoying the spring like days and the sunshine that comes with it. She has been told by Grandma Judy that we need the rain and Taylor said that she will ask for some rain and then some more sun. Taylor is showing off the balloon animal dog that her Dad just learned how to make for her.