Taylor had a good day today. She woke up to a visit from her brother. Later she had her teacher come to her room to give her lessons. She was unable to leave her room because she stayed on the ventilator all day. Her pacer is working but she is not getting the deep breaths that she is comfortable with. The doctors are working to find a solution. They reassured the family that everything is fine and that this is something that they can work out. Taylor skipped the bike today since she was unable to go downstairs. She is working with occupational therapy to get technology to allow her to use a computer on her own. She was in great spirits tonight and is being her usual joking self.