Saturday, December 22, 2007

Taylor seems to be enjoying her school break. Her days are still filled with plenty of work, riding her bike, keeping her brother busy helping her to work on her computer at home, thinking of things she wants to get people for Christmas and thinking of things people can give her for Christmas. Always the thinker. She had one more person trained in her care last week so that she can go visit them by herself. She was extremely helpful and thoughtful during the training process. In order for her to be able to visit with someone without her mom, dad or nurse along the person needs to be trained to change her trach in the case of an emergency. This is a procedure Taylor has done on a scheduled basis every couple of weeeks and during this change a new person was broken in. At the end Taylor reassured them that they had done a great job. She also told them that she could tell they were nervous so she purposely didn't tense up to help them out. Who is the grownup here anyway??? What a great trooper. I've known it all along but she just keeps reaffirming the fact. Taylor wants to wish everyone a VERY, MERRY CHRISTMAS and Thank all of you again for your thoughts and prayers and especially thank you for all the spiritual and verbal HUGS!!!! Her strength is amazing and our hopes for her are strong. Thank you all!!!

Sunday, December 2, 2007

Taylor's soar on her back was completely heeled this week. This allowed her to get around much better in her chair. She had a good week at school and is still doing well. This week was short due to parent teacher conferences. Taylor has been doing great in school and got a great report excelling in all areas. She has been using a computer to assist her at school and she is getting much better using it. She also went to the movies this week with her brother and her friend Avery. They say "Fred Claus". She also got a white fish for her room because she has been helping the nurses complete her care with little resistance. She named the fish "Snowflake".