Sunday, April 29, 2007

Taylor was very greatful to all who sent their ice cream flavors to her. It created a lot more work for her on her school survey. She learned how to enter it on the computer and create a bar graph using excel. Taylor finally got to see her horses today. Blackie and Lady paid her a visit in the evening. She held a granola bar in her mouth and Blackie ate it out of her mouth. Then he gave her kisses on the cheeck. She went back to the hospital and did stamps in the recreation room. She had a good day.

Saturday, April 28, 2007

Today was a big day for Taylor. She was granted a day pass and was allowed to leave the hospital without a nurse or a respritory therapist. She enjoyed the whole day at her aunt and uncles house in Woodland. She got to see her cousins and get out of the hospital. It really lifted her spirits. Tomorrow there is plans for her to see her horse for the first time since going into the hospital. She can't wait to see "Lady".

Friday, April 27, 2007

Taylor has had a busy couple of days. She continues to ride her bike and go to school. One of her school projects is to see what kind of ice cream people like. The choices are Vanila, Strawberry, Chocolate, and Other. If you want to participate please email her your favorite. She is one step closer to going home. After getting her case denied by Enloe for the 3rd straight request a company out of Sacramento has agreed to provide her with the ventilator equipment that she needs. She is hopeing to go home to Chico within 2 to 4 weeks.

Tuesday, April 24, 2007

Taylor slept good last night after her exhausting day at the zoo. Today she got outside in her chair. She has been getting tired of just seeing the same block over and over so she went to a new block to see the new scenery. She also spent more time on the bike today. It has done little to help her regain movement but it is helping her keep muscle mass. She spent little time on her new ventilator last night. She did not like it and they decided to try it another day.

Monday, April 23, 2007

Taylor had a great day today. She still had to ride the bike but she also got to go to the zoo. This was her first big trip out of the hospital since the accident. She did very well. She got to see the penguins, giraffe, monkeys, birds, and snakes. She really liked the penguins and giraffes. She later took a nap back at her room because the trip was exhausting. She had very little anxiety for her first trip in an automobile since the accident. Tonight she is switching to a different ventilator than she is used to. This one is more similar to the one she will go home with.

Sunday, April 22, 2007

Taylor got up early this morning eager to get the day started. Due to the pressure soars on her back they have been more aggressive with turning her at night and she woke up during one of the turns at 4 am this morning. She still got out of her room and took a tour in the hospital due to the weather today. She is excited for tomorrow. The weather should be good and the hospital has arranged for her to take a trip to the Sacramento Zoo. She is excited to see the penguins that are currently at the zoo.

Saturday, April 21, 2007

Taylor continues to do well with her attitude. She has been dealing with her soars and spends a lot of time in her bed on her side to give them time to heal. Doctors have discused a possible trip to the zoo Monday morning for Taylor.

Friday, April 20, 2007

Taylor has had a tough but rewarding couple of days. Doctor's continue to watch her developing soars on her back. They are getting better and she is now spending more time in her chair. Taylor was eager to go to school and the bike today. She has started using her ventilator while on the bike. They are unable to change the settings on her pacer and when Taylor is riding the bike she needs larger breaths due to exercsion. The ventilator makes it more comfortable for her to use the bike. She is still being a trooper.

Wednesday, April 18, 2007

Taylor had a long day today. She did her usual routine that normally exhausts her however it was made more difficult by the fact that she was unable to talk today. Respritory speculates that there is some secretions that are not allowing her voicebox to function properly. This is making it to where Taylor is unable to talk. Needless to say this is very frustrating for her. Doctors seem to have little concern with it and believe that she will regain her voice very soon once the secretions have cleared. Her appetite continues to improve and she is working hare to take all of her fluids and food orally. She is still excited to be on track for an early May return to her home.

Tuesday, April 17, 2007

Taylor has been increasing her activity. Tonight she went across the street and had grilled cheese, bread and cake for dinner. Her appetite has recently increased, however she continues to struggle with trying to gain weight and has started to take more feeds through her stomach tube. She needs to keep her weight up to be able to return to Chico in May. Arrangements are being made for her return. Her nurses are coming to the hospital on Thursday to be trained in Taylor's care. She still has had success in breathing all day off of the ventilator with just the assistance of the phrenic pacer.

Saturday, April 14, 2007

Taylor has continued to enjoy more time in her chair. She has gone across the street to a restauraunt to enjoy meals. She goes to the second floor to watch the other kids play. She continues her efforts in school and on the bike. Taylor is eager to go home and is waiting until the first of May when it becomes reality. Her pacer appears to be working well and her oxygen levals have stayed up even when she goes outside. She is hopeful that she will see one of her horses soon. She has started to develop a pressure soar from sitting in the chair so much so for now she will rest in bed a little longer.

Wednesday, April 11, 2007

Taylor has had a couple of really good days. Tuesday she was quick to jump at the chance to ditch A.J. (her occupational therapist) and duck across the street to get a quick cup of juice to start her day. She was back in time to actually do her therapy but was thrilled at the idea of A.J. showing up to find her already out and about for the day. She did not do her therapy on the bike today as she had the feeding tube changed to a micky button today. She has been sleeping well lately and her appetite is improving each day. She maintains her spunky attitude and continues to love playing jokes or tricks on people whenever she can.

Tuesday, April 10, 2007

Taylor was in a great mood today. She did the bike early in the morning and was a little tested by about 15 minutes. This is usual considering the time that she has gone without riding the bike. Today she went outside and cruised to get a smoothie outside of the hospital. She is hoping to see her horses soon. Her spirits remain strong and her sense of humor is still sharp. Her appetite is slowly coming back and she enjoyes eating her homemade pasta.

Monday, April 9, 2007

Taylor has done well since the last update. She is now back to using the pacer full time during the day and only on the ventilator at night. She has been more active with trips down to the bike and has enjoyed staying out of her room for 4 hours at a time. Taylor continues to have high anxiety and is anxious to go home. She is looking forward to visits out of the hospital and is hopeful that she will see her horses soon when they come to visit her in Sacramento. She enjoyed an Easter egg hunt with the other kids in the hospital. Not being able to move her arms or legs was not a deterent. She had and eagle eye to scout out the eggs.

Wednesday, April 4, 2007

Taylor had a tough day today. She remained on the ventilator while doctors wait for a new pacer to try their theory that she needs longer stimulation of the nerves. She was unable to leave her room today and was exhausted due to the fact that she had a difficult time sleeping last night.

Tuesday, April 3, 2007

Taylor got a great night sleep last night. Today she was placed back on the bipap ventilator machine to help keep her volumes up on her breathing. She did not let that stop her. She got into her automatic chair and took it for a cruise around the hospital. She has started to eat better and is liking the home made food that her family is bringing to the hospital.

Monday, April 2, 2007

Taylor has had a busy weekend. She had her party with some friends on Saturday and they decorated her room for Easter. On Sunday they tried to go downstairs and Taylor's title volumes dropped and she had to return to her room. Today she started on the bike. She did it for an hour and a half and then stayed in her chair for four hours and was able to go outside and enjoy the beutiful day. Her mood goes up and down and she is in a good mood for the most part. Her nursing and respritory therapy is getting finished in Chico and she is expected to go home in May.